Where It Started...

When I started this blog it was a really personal journey towards making a huge decision. I had to decide if having an MVD was the right way forward for me and my family. I decided, even at the beginning that the blog was about hope. I had so much hope that surgery was the only way forward, I hoped and believed that ANY degree of pain relief was worth the long and complicated surgery and that I would have a new quality of life to enjoy and share with my loved ones.

Despite the huge disaster of my surgery and everything the experience stole from me, I believe I have continued (on the whole) to focus on the word HOPE. I know that there is no surgical option for me, perhaps changes in medication might help, but I now focus on the hope that awareness, education and research can bring to the thousands in a similar position to me. The TNnME campaign to raise awareness has become huge and it seems the 2nd International Awareness Day is going to be bigger and better than the first. I will, like last year, have my place in the UK arm of TNnME and awareness and fund raising for The Facing Facial Pain Research Foundation.

Until then, the word I still wish to be associated with, even after all the disasters that have happened to me personally, is the word HOPE. It is said, that, 'The person who has hope, has everything', (unknown).

There is a lot more happening in the world of TN than just a few years ago and that gives us all hope for the future.

                                 
                                                   Images by Nikki Samuel